[Federal Register Volume 76, Number 250 (Thursday, December 29, 2011)]
[Notices]
[Pages 81945-81947]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: 2011-33290]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Agency for Healthcare Research and Quality
Request for Measures and Domains To Use in Development of a
Standardized Instrument for Use in Public Reporting of Family
Experience of Pediatric Inpatient Care
AGENCY: Agency for Healthcare Research and Quality (AHRQ), HHS.
ACTION: Notice of request for measures and domains.
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SUMMARY: Section 401(a) of the Children's Health Insurance Program
Reauthorization Act of 2009 (CHIPRA), Public Law 111-3, amended the
Social Security Act (the Act) to enact section 1139A (42 U.S.C. 1320b-
9a). Section 1139A(b) charged the Department of
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Health and Human Services with improving pediatric health care quality
measures. The Agency for Healthcare Research and Quality (AHRQ) is
soliciting the submission of instruments or domains (for example, key
concepts) measuring aspects of families' experience with the quality of
inpatient medical and surgical hospital care from all researchers,
vendors, hospitals, stakeholders, and other interested parties. The
survey development team of Children's Hospital Boston Center of
Excellence for Pediatric Quality Measurement (CEPQM), is one of the
CHIPRA Pediatric Quality Measures Program (PQMP) Centers of Excellence,
which were created pursuant to an interagency agreement between the
Centers for Medicare & Medicaid Services (CMS) and AHRQ, and are funded
through cooperative agreement awards with AHRQ. AHRQ is interested in
instruments and items through which families of pediatric patients
assess the care their child receives during the child's inpatient stay.
The goal is to develop a standardized instrument for use in the public
reporting of family experience of pediatric inpatient care. The team
developing this survey intends to submit it to the CAHPS Consortium to
request use of the CAHPS trademark. The survey will be developed in
accordance with CAHPS Survey Design Principles and will develop
implementation instructions based on those for CAHPS instruments
(https://www.cahps.AHRQ.gov/About-CAHPS/Principles.aspx.) All CAHPS
surveys are available to users free of charge and are published on the
AHRQ Web site.
DATES: Please submit materials January 30, 2012. AHRQ will not respond
to individual submissions, but will consider all suggestions.
ADDRESSES: Electronic submissions are encouraged, preferably as an
email with an electronic file in a standard word processing format as
an email attachment. Submissions may also be in the form of a letter
to: Maushami DeSoto, MHA, Ph.D., Staff Service Fellow, Office of
Extramural Research, Education and Priority, Populations Agency for
Healthcare Research and Quality, 540 Gaither Rd, Rockville, MD 20850,
Phone: (301) 427-1546, Fax: (301) 427-1238, Email:
Maushami.DesotoAHRQ.hhs.gov.
All submissions must include a written statement from the submitter
that it will grant AHRQ the necessary rights to use, modify, and adapt
the submitted instruments, items, and their documentation for the
development of this survey and its dissemination for AHRQ purposes. In
accordance with CHIPRA's charge to improve pediatric quality care
measures, and consistent with AHRQ's mandate to disseminate research
results, 42 U.S.C. 299c-3, AHRQ purposes include public disclosure and
dissemination (e.g., on the AHRQ Web site) of AHRQ products and the
results of AHRQ-sponsored research and activities. The written
statement must be signed by an individual authorized to act for any
holder of copyright and/or data rights on each submitted measure or
instrument. The authority of the signatory to provide such
authorization should be described in the letter. Submitters must attach
a proposed license granting all of the above-referenced rights,
including the following terms:
A worldwide, royalty-free, nonexclusive, irrevocable
license to AHRQ and those acting on its behalf to reproduce, prepare
derivative works of, and otherwise use the submitted materials for the
development of AHRQ products, including a standardized instrument for
use in the public reporting of family experience of pediatric inpatient
care; and
The right of AHRQ and those acting on its behalf to
publicly disseminate, in any media (including AHRQ's Web site), any
derivative works that AHRQ or those acting on its behalf develops based
on the submitted materials.
Submission Guidelines
When submitting instruments, please include, to the extent that it
is available:
Name of the instrument;
Copies of the full instrument, in all languages available;
Domains or key concepts included in the instrument;
Instrument reliability (internal consistency, test-retest,
etc) and validity (content, construct, criterion-related);
Results of cognitive testing;
Results of field-testing;
Current use of the instrument (who is using it, what it is
being used for, how instrument findings are reported, and by whom the
findings are used); and
Relevant peer-reviewed journal articles or full citations.
When submitting domains, please include, to the extent available:
Detailed descriptions of question domain and specific
purpose;
Sample questions, in all languages available; and
Relevant peer-reviewed journal articles or full citations.
For all submissions, please also include:
A brief cover letter summarizing the information requested
above for submitted instruments and domains, respectively;
Complete information about the person submitting the
material, including:
(a) Name;
(b) Title;
(c) Organization;
(d) Mailing address;
(e) Telephone number;
(f) Email address; and
(g) The written statement granting AHRQ the necessary rights to
use, modify, and adapt the submitted instruments, items, and their
supporting documentation for the development of the survey and its
dissemination for AHRQ purposes, as described above.
FOR FURTHER INFORMATION CONTACT: Maushami DeSoto, MHA, Ph.D.
SUPPPLEMENTARY INFORMATION: Section 401(a) of the Children's Health
Insurance Program Reauthorization Act of 2009 (CHIPRA), Public Law 111-
3, amended the Social Security Act (the Act) to enact section 1139A (42
U.S.C. 1320b-9a). Since the law was passed, the Agency for Healthcare
Research and Quality (AHRQ) and the Centers for Medicare & Medicaid
Services (CMS) have been working together to implement selected
provisions of the legislation related to children's health care
quality. Section 1139A(b) of the Act charged the Department of Health
and Human Services with improving pediatric health care quality
measures. To implement the law, AHRQ and CMS have established the
CHIPRA Pediatric Quality Measures Program (PQMP), which is designed to
enhance select pediatric quality measures and develop new measures as
needed.
The Children's Hospital Boston Center of Excellence for Pediatric
Quality Measurement (CEPQM) is one of seven CHIPRA PQMP Centers of
Excellence, which were created pursuant to an interagency agreement
between CMS and AHRQ and funded through cooperative agreement awards
with AHRQ. CEPQM has been assigned to develop a family experience of
pediatric inpatient care measure to be considered as a standardized
instrument for publicly reporting pediatric inpatient hospital family
experiences voluntarily by State Medicaid and CHIP programs and to be
used by providers, consumers, other public and private purchasers, and
others. The team developing this survey intends to submit it to the
CAHPS Consortium to request use of the CAHPS trademark.
Existing instruments or domains submitted should capture the
family's experience of hospital or related care (for example,
preparation for discharge or care coordination). The survey development
team is looking for items
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for which families of pediatric inpatients are generally the best or
only judge; for example, the family can best say if the provider spent
sufficient time with them or explained things in ways they could
understand. Existing instruments that have been tested should have a
high degree of reliability and validity; and evidence of wide use will
be helpful.
Dated: December 20, 2011.
Carolyn M. Clancy,
AHRQ Director.
[FR Doc. 2011-33290 Filed 12-28-11; 8:45 am]
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