[Congressional Bills 109th Congress]
[From the U.S. Government Publishing Office]
[H. Con. Res. 357 Introduced in House (IH)]







109th CONGRESS
  2d Session
H. CON. RES. 357

 Supporting the goals and ideals of National Cystic Fibrosis Awareness 
                                 Month.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                             March 14, 2006

 Mr. Stearns (for himself, Mr. Markey, Mr. Towns, Mr. Van Hollen, Mr. 
Kildee, Mr. Lewis of Georgia, Mr. Bass, Mr. McCotter, Mr. McNulty, Mrs. 
   Blackburn, Ms. Bordallo, Mr. Upton, Mr. Pallone, Mr. Wexler, Mr. 
  Jefferson, Mr. Grijalva, Mrs. Drake, Mr. Conyers, Ms. Eddie Bernice 
   Johnson of Texas, Mr. Waxman, Mrs. Jo Ann Davis of Virginia, Mr. 
   Radanovich, Mrs. Bono, Mr. McGovern, and Mr. Oxley) submitted the 
following concurrent resolution; which was referred to the Committee on 
                          Energy and Commerce

_______________________________________________________________________

                         CONCURRENT RESOLUTION


 
 Supporting the goals and ideals of National Cystic Fibrosis Awareness 
                                 Month.

Whereas cystic fibrosis is one of the most common life-threatening genetic 
        diseases in the United States and one for which there is no known cure;
Whereas the average life expectancy of an individual with cystic fibrosis is 35 
        years, an improvement from a life expectancy of 10 years in the 1960s, 
        but still unacceptably short;
Whereas approximately 30,000 people in the United States have cystic fibrosis, 
        more than half of them children;
Whereas one of every 3,500 babies born in the United States is born with cystic 
        fibrosis;
Whereas more than 10,000,000 Americans are unknowing, symptom-free carriers of 
        the cystic fibrosis gene;
Whereas the Centers for Disease Control and Prevention recommends that all 
        States consider newborn screening for cystic fibrosis;
Whereas the Cystic Fibrosis Foundation urges all States to implement newborn 
        screening for cystic fibrosis to facilitate early diagnosis and 
        treatment which improves health and longevity;
Whereas prompt, aggressive treatment of the symptoms of cystic fibrosis can 
        extend the lives of people who have the disease;
Whereas recent advances in cystic fibrosis research have produced promising 
        leads in gene, protein, and drug therapies beneficial to people who have 
        the disease;
Whereas innovative research is progressing faster and is being conducted more 
        aggressively than ever before, due, in part, to the Cystic Fibrosis 
        Foundation's establishment of a model clinical trials network;
Whereas although the Cystic Fibrosis Foundation continues to fund a research 
        pipeline for more than two dozen potential therapies and funds a 
        nationwide network of care centers that extend the length and quality of 
        life for people with cystic fibrosis, lives continue to be lost to this 
        disease every day;
Whereas education of the public about cystic fibrosis, including the symptoms of 
        the disease, increases knowledge and understanding of cystic fibrosis 
        and promotes early diagnosis; and
Whereas the Cystic Fibrosis Foundation will conduct activities to honor National 
        Cystic Fibrosis Awareness Month in May, 2006: Now, therefore, be it
    Resolved by the House of Representatives (the Senate concurring), 
That the Congress--
            (1) honors the goals and ideals of National Cystic Fibrosis 
        Awareness Month;
            (2) promotes further public awareness and understanding of 
        cystic fibrosis;
            (3) advocates for increased support for people who have 
        cystic fibrosis and their families;
            (4) encourages early diagnosis and access to quality care 
        for people with cystic fibrosis to improve the quality of their 
        lives; and
            (5) supports research to find a cure for cystic fibrosis by 
        fostering an enhanced research program through a strong Federal 
        commitment and expanded public-private partnerships.
                                 <all>