[Congressional Bills 113th Congress]
[From the U.S. Government Publishing Office]
[H.R. 4170 Introduced in House (IH)]
113th CONGRESS
2d Session
H. R. 4170
To provide for a Youth Mental Health Research Network.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
March 6, 2014
Mr. Fattah introduced the following bill; which was referred to the
Committee on Energy and Commerce
_______________________________________________________________________
A BILL
To provide for a Youth Mental Health Research Network.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Youth Mental Health Research Act''.
SEC. 2. FINDINGS.
Congress finds the following:
(1) More than 100 million Americans currently have some
sort of brain-related condition. Millions of Americans, many of
whom are currently school children, have some sort of
developmental delay, autism, or learning disability.
(2) Moreover, many Americans suffer from some form of
psychotic disorder, including schizophrenia and affective
psychotic disorders.
(3) These brain disorders usually result in significant
life-long disability, and psychotic disorders in particular,
despite advances in treatment, rank among the top causes of
disability worldwide.
(4) Neuroscience research has the potential to dramatically
improve the quality of life for people facing brain disease and
injury, and to significantly improve our understanding of
learning.
(5) Because of the impact on the health and economy of the
country, the Federal Government has taken a special interest in
promoting neuroscience and mental health research. Several
Federal agencies, including the National Science Foundation,
National Institutes of Health (NIH), Veterans Administration,
and Department of Defense oversee research on the brain and
nervous system.
(6) In December 2011, Congress directed the Office of
Science and Technology Policy to establish an Interagency
Working Group on Neuroscience (IWGN). The IWGN is currently
convening representatives across the Federal Government to make
recommendations about the future of neuroscience research.
(7) Given the findings about the role of mental illness in
multiple shootings across the Nation, including Newton,
Connecticut, Aurora, Colorado, and other communities
experiencing similar tragedies, the Federal Government has an
interest in pursuing research on the early detection,
intervention, and prevention of psychosis.
(8) In line with this, the Federal Government is looking
for new ways of increasing the Nation's knowledge of the
underlying causes of psychosis.
(9) The United States commitment to furthering the early
detection of mental illness in youth was seen in its
participation in two public/private research programs that
studied the earliest stages of psychotic illness, namely--
(A) the North American Prodrome Longitudinal Study
(NAPLS); and
(B) the Recovery After an Initial Schizophrenia
Episode (RAISE) initiative.
SEC. 3. YOUTH MENTAL HEALTH RESEARCH NETWORK.
(a) Youth Mental Health Research Network.--
(1) Network.--The Director of the National Institutes of
Health may provide for the establishment of a Youth Mental
Health Research Network for the conduct or support of--
(A) youth mental health research; and
(B) youth mental health intervention services.
(2) Collaboration by institutes and centers.--The Director
of NIH shall carry out this Act acting--
(A) through the Director of the National Institute
of Mental Health; and
(B) in collaboration with other appropriate
national research institutes and national centers that
carry out activities involving youth mental health
research.
(3) Mental health research.--
(A) In general.--In carrying out paragraph (1), the
Director of NIH may award cooperative agreements,
grants, and contracts to State, local, and tribal
governments and private nonprofit entities for--
(i) conducting, or entering into consortia
with other entities to conduct--
(I) basic, clinical, behavioral, or
translational research to meet unmet
needs for youth mental health research;
or
(II) training for researchers in
youth mental health research
techniques;
(ii) providing, or partnering with non-
research institutions or community-based groups
with existing connections to youth to provide,
youth mental health intervention services; and
(iii) collaborating with the National
Institute of Mental Health to make use of, and
build on, the scientific findings and clinical
techniques of the Institute's earlier programs,
studies, and demonstration projects.
(B) Research.--The Director of NIH shall ensure
that--
(i) each recipient of an award under
subparagraph (A)(i) conducts or supports at
least one category of research described in
subparagraph (A)(i)(I) and collectively such
recipients conduct or support all such
categories of research; and
(ii) one or more such recipients provide
training described in subparagraph (A)(i)(II).
(C) Number of award recipients.--The Director of
NIH may make awards under this paragraph for not more
than 70 entities.
(D) Supplement, not supplant.--Any support received
by an entity under subparagraph (A) shall be used to
supplement, and not supplant, other public or private
support for activities authorized to be supported under
this paragraph.
(E) Duration of support.--Support of an entity
under subparagraph (A) may be for a period of not to
exceed 5 years. Such period may be extended by the
Director of NIH for additional periods of not more than
5 years.
(4) Coordination.--The Director of NIH shall--
(A) as appropriate, provide for the coordination of
activities (including the exchange of information and
regular communication) among the recipients of awards
under this subsection; and
(B) require the periodic preparation and submission
to the Director of reports on the activities of each
such recipient.
(b) Intervention Services for, and Research on, Severe Mental
Illness.--
(1) In general.--In making awards under subsection (a)(3),
the Director of NIH shall ensure that an appropriate number of
such awards are awarded to entities that agree to--
(A) focus primarily on the early detection and
intervention of severe mental illness in young people;
(B) conduct or coordinate one or more multisite
clinical trials of therapies for, or approaches to, the
prevention, diagnosis, or treatment of early severe
mental illness in a community setting;
(C) rapidly and efficiently disseminate scientific
findings resulting from such trials; and
(D) adhere to the guidelines, protocols, and
practices used in the North American Prodrome
Longitudinal Study (NAPLS) and the Recovery After an
Initial Schizophrenia Episode (RAISE) initiative.
(2) Data coordinating center.--
(A) Establishment.--In connection with awards to
entities described in paragraph (1), the Director of
NIH shall establish a data coordinating center for the
following purposes:
(i) To distribute the scientific findings
referred to in paragraph (1)(C).
(ii) To provide assistance in the design
and conduct of collaborative research projects
and the management, analysis, and storage of
data associated with such projects.
(iii) To organize and conduct multisite
monitoring activities.
(iv) To provide assistance to the Centers
for Disease Control and Prevention in the
establishment of patient registries.
(B) Reporting.--The Director of NIH shall--
(i) require the data coordinating center
established under subparagraph (A) to provide
regular reports to the Director of NIH on
research conducted by entities described in
paragraph (1), including information on
enrollment in clinical trials and the
allocation of resources with respect to such
research; and
(ii) as appropriate, incorporate
information reported under clause (i) into the
Director's biennial reports under section 403
of the Public Health Service Act (42 U.S.C.
283).
(c) Definitions.--In this Act, the terms ``Director of NIH'',
``national center'', and ``national research institute'' have the
meanings given to such terms in section 401 of the Public Health
Service Act (42 U.S.C. 281).
(d) Authorization of Appropriations.--To carry out this Act, there
is authorized to be appropriated $25,000,000 for each of fiscal years
2015 through 2019.
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