[Congressional Bills 113th Congress]
[From the U.S. Government Publishing Office]
[H.R. 565 Introduced in House (IH)]
113th CONGRESS
1st Session
H. R. 565
To amend title III of the Public Health Service Act to authorize and
support the creation of cardiomyopathy education, awareness, and risk
assessment materials and resources by the Secretary of Health and Human
Services through the Centers for Disease Control and Prevention and the
dissemination of such materials and resources by State educational
agencies to identify more at-risk families.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
February 6, 2013
Mr. Pallone introduced the following bill; which was referred to the
Committee on Energy and Commerce
_______________________________________________________________________
A BILL
To amend title III of the Public Health Service Act to authorize and
support the creation of cardiomyopathy education, awareness, and risk
assessment materials and resources by the Secretary of Health and Human
Services through the Centers for Disease Control and Prevention and the
dissemination of such materials and resources by State educational
agencies to identify more at-risk families.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Cardiomyopathy Health Education,
Awareness, Risk Assessment, and Training in the Schools (HEARTS) Act of
2013''.
SEC. 2. MATERIALS AND RESOURCES TO INCREASE EDUCATION AND AWARENESS OF
CARDIOMYOPATHY AMONG SCHOOL ADMINISTRATORS, EDUCATORS,
AND FAMILIES.
Part P of title III of the Public Health Service Act (42 U.S.C.
280g et seq.) is amended by adding at the end the following new
section:
``SEC. 399V-6. MATERIALS AND RESOURCES TO INCREASE EDUCATION AND
AWARENESS OF CARDIOMYOPATHY AMONG SCHOOL ADMINISTRATORS,
EDUCATORS, AND FAMILIES.
``(a) Materials and Resources.--Not later than 18 months after the
date of the enactment of this section, the Secretary of Health and
Human Services (in this section referred to as the `Secretary'), in
conjunction with the Director of the Centers for Disease Control and
Prevention (in this section referred to as the `Director') and in
consultation with national patient advocacy and health professional
organizations expert in all forms of cardiomyopathy, shall develop
public education and awareness materials and resources to be
disseminated to school administrators, educators, school health
professionals, coaches, families, and other appropriate individuals.
The materials and resources shall include--
``(1) background information to increase education and
awareness of cardiomyopathy among school administrators,
educators, and families;
``(2) a cardiomyopathy risk assessment worksheet for use by
parents, guardians, or other caregivers;
``(3) guidelines regarding the placement of automated
external defibrillators in schools and child care centers;
``(4) training information on automated external
defibrillators and cardiopulmonary resuscitation; and
``(5) recommendations for how schools and child care
centers can develop and implement a cardiac emergency response
plan.
``(b) Development of Materials and Resources.--The Secretary,
through the Director, shall develop and update as necessary and
appropriate the materials and resources under subsection (a) and, in
support of such effort, the Secretary is encouraged to--
``(1) establish an advisory panel composed of--
``(A) representatives from multiple national
patient advocacy organizations and medical
professionals expert in all forms of cardiomyopathy;
``(B) a representative from the Centers for Disease
Control and Prevention; and
``(C) representatives from other relevant Federal
agencies; and
``(2) engage in a memorandum of understanding or
cooperative agreement with a national nonprofit advocacy
organization expert in all forms of cardiomyopathy.
``(c) Dissemination of Materials and Resources.--Not later than 30
months after the date of the enactment of this section, the Secretary,
through the Director, shall disseminate the materials and resources
under subsection (a) in accordance with the following:
``(1) Distribution by state education agencies.--The
Secretary shall make available such materials and resources to
State educational agencies to distribute--
``(A) to school administrators, educators, school
health professionals, coaches and parents, guardians,
or other caregivers, the cardiomyopathy education and
awareness materials and resources under subsection (a);
``(B) to parents, guardians, or other caregivers,
the cardiomyopathy risk assessment worksheet described
in subsection (a)(2); and
``(C) to school administrators and school health
professionals, the--
``(i) guidelines described in subsection
(a)(3);
``(ii) training information described in
subsection (a)(4); and
``(iii) recommendations described in
subsection (a)(5).
``(2) Dissemination to health departments and
professionals.--The Secretary shall make available such
materials and resources to State and local health departments,
pediatricians, hospitals, and other health professionals, such
as nurses and first responders.
``(3) Posting on website.--
``(A) CDC.--
``(i) In general.--The Secretary, through
the Director, shall post the materials and
resources developed under subsection (a) on the
public Internet website of the Centers for
Disease Control and Prevention.
``(ii) Additional information.--The
Director is encouraged to maintain on such
public Internet website such additional
information regarding cardiomyopathy as deemed
appropriate by the Director.
``(B) State education agencies.--State educational
agencies are encouraged to create public Internet
webpages dedicated to cardiomyopathy and post the
materials and resources developed under subsection (a)
on such webpages.
``(d) Report to Congress.--Not later than 1 year after the date of
the enactment of this Act, and annually thereafter, the Secretary shall
submit to Congress a report identifying the steps taken to increase
public education and awareness of cardiomyopathy as outlined under this
section.
``(e) Definitions.--For purposes of this section:
``(1) Cardiomyopathy.--The term `cardiomyopathy' means a
rare heart condition, which is a disease of the heart muscle
(myocardium)--
``(A) the symptoms of which may vary from case to
case, including--
``(i) in some cases, the presentation of no
symptoms (asymptomatic); and
``(ii) in many cases, the symptoms of a
progressive condition that may result in an
impaired ability of the heart to pump blood,
fatigue, irregular heart-beats (arrhythmia),
and, potentially, sudden cardiac death or heart
failure; and
``(B) the recognized types of which include
dilated, hypertrophic, restrictive, arrhythmogenic
right ventricular dysplasia, and left ventricular
noncompaction.
``(2) School administrators.--The term `school
administrator' means a principal, director, manager, or other
supervisor or leader within an elementary school or secondary
school (as such terms are defined under section 9101 of the
Elementary and Secondary Education Act of 1965 (20 U.S.C.
7801)), State-based early education program, or child care
center.
``(3) Schools.--The term `school' means an early education
program, child care center, or elementary school or secondary
school (as such terms are so defined).
``(4) National nonprofit advocacy organizations expert in
all forms of cardiomyopathy.--The term `national nonprofit
advocacy organizations expert in all forms of cardiomyopathy'
means organizations that provide support services to families
or fund research, and work to increase public awareness and
education regarding all types of cardiomyopathy.
``(f) Authorization of Appropriations.--To carry out this section,
there are authorized to be appropriated $1,000,000 for fiscal year
2014, $750,000 for fiscal year 2015, and $500,000 for each of fiscal
years 2016 through 2018.''.
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